Fifteen
people at the tiny town of Nguiu on Bathurst Island are receiving
weekly dialysis for their kidney malfunction. Ten of them are
in receipt of this at the island's own dialysis unit, and a further
five are in Darwin being introduced to the process.
Three days every week they spend hooked up to a machine to cleanse
their bodies.
Remarkable in itself, that the quality of life can be sustained
through technology.
This becomes even more remarkable when a transplant becomes available
to one of the patients and they are able to lead an almost "normal"
life.
The difference between them and us is that they have to take medication
for the rest of their lives, to prevent rejection and maintain
kidney function.
The concern is that the number of people having to be admitted
for dialysis is increasing each year, and this is a world wide
trend.
This at a time when the cost of medicines is under close scrutiny,
and questions are being asked as to how many and what sort of
medicines should be included on the Pharmaceutical Benefits Scheme.
The cost to a renal transplant patient is likely to be $40 a day
after the transplant.
This equates to $280 a week or $15,000 a year.
Compare this with the cost of $500 per session when the patient
was on dialysis, and it is not a huge amount.
However with the centre of discussion being on the cost of the
PBS, it has to be asked where the line is drawn when it comes
to the provision of taxpayer funded medicines.
Should it be for certain clinical indications?
Should it be on the basis of ability to pay?
Should it be restricted to just the "base" priced generic
label product?
When the cost goes out of control, and now it is, there has to
be a close look at what the PBS is all about.
Is it to provide the transplant patients with the medicines to
stay alive, or is it to provide the wealthy lawyer in Melbourne's
William Street with a cholesterol lowering medicine.
Pharmacists are not immune to this discussion, and should not
rest on their laurels and "wait and see" what the Government
decides in the Federal Budget in two weeks time.
Pharmacy is a part of contributing to the cost as are doctors,
drug companies and the consumer.
On Bathurst Island the lifestyle is a mix of two cultures, yet
of all the remote Aboriginal communities in the north of Australia,
the Tiwi people have stronger links to their traditional culture
than many others.
They are still an underprivileged group of citizens in Western
culture terms and deserve the best available, and yet they still
do not have access to the Pharmaceutical Benefits Scheme.
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